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ebpatient.com - Welcome! Epidermolysis Bullosa - Through the Eyes of a Patient - <strong>...</strong>
Welcome! Epidermolysis Bullosa - Through the Eyes of a Patient - Butterfly Children
Descripción: A women with RDEB offers helpful, in depth info about the severe genetic skin disorder Epidermolysis Bullosa. Includes medical care, recipes, links, research updates, support group information and much more. This site is for EB ...
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idioma: English
Temas de este sitio:  conditions
Debra of America -Dystrophic Epidermolysis Bullosa Research ...
The Dystrophic Epidermolysis Bullosa Research Association of America (debra), the only national non-profit dedicated to funding research and providing services and ...
debra.org - 

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EB Info World
Information, mailing list, pictures, and help for new parents.
ebinfoworld.com - 

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NOAH — The National Organization for Albinism and ...
An organization where people with albinism, their families and those that work with them can get information, ask questions and share their experiences.
albinism.org - 

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- Welcome to DEBRA - DEBRA
Features organization background, information about the disorder, fundraising and research details, and news.
debra.org.uk - 

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EBMRF - Epidermolysis Bullosa Medical Research Foundation
The EBMRF is a volunteer, non-profit Foundation dedicated to helping medical scientists learn more about EB, its causes, the development of successful treatments ...
ebkids.org - 

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The Progeria Project Foundation - "It's About Time" - ...
Progeria: A very rare terminal condition. From the Greek meaning "prematurely old". Characterized by an appearance of accelerated aging. This Web Site is ...
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DEBRA Canada l Working for a Life Free of Pain
A small group of relatives and friends of EB patients founded DEBRA Canada in 1998. That informal group has evolved into a Board of 10 people who meet monthly to ...
debracanada.org - 

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p2 design - original needlework designs & handcrafted gifts
Free patterns including hats, mittens and ear mitts for all ages. Also baby patterns: layettets, hats and socks.
p2designs.com - 

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